The C.A.R.E. Cardiac Arrhythmias Support Community connects patients, families, friends and caregivers for support and inspiration... More about this group

Join today

All new and active discussions & journals

New feature: video!

Brian
  • By Brian · New reply 4:00 pm
  • Journal · 15 replies
  • I am pleased to announce that we have updated Inspire to support video. You can now share a video of yourself, videos that you find inspirational or informative, and more. I've included one of myself ...

My story...

Brianne
  • By Brianne · Posted November 16, 2008
  • Journal · 0 replies
  • I did not know I had long qt before my cardiac arrest. I actually went to the hospital for severe abdominal pain one morning and the doctors determined I had an appendicitis. They started surgery and ...

Why are we here?

Brian
  • By Brian · New reply November 16, 2008
  • Journal · 124 replies
  • When we started this community, each of us faced important health issues in our lives. Some of us have family members with medical conditions. Many of us have medical conditions of our own. All of us ...

My inappropriate sinus tachycardia

Darline
  • By Darline · Posted November 15, 2008
  • Discussion in Building awareness · 0 replies
  • Hi everyone, My name is Darline and I and 28 years old with a 6 year old son. My heart issues started in febuary of this year. I woke up one night at 3:00am. I was feeling sick to my stomach, flushed ...

CATECHOLAMINERGIC POLYMORPHIC VENTRICULAR TACHYCARDIA

chrismarch03
  • By chrismarch03 · New reply November 14, 2008
  • Discussion in Building awareness · 7 replies
  • OUR 14-YEAR OLD SON COLLAPSED AT SCHOOL AND WAS REVIVED WITH A IED. HE WAS DIAGNOSED WITH CPVT, PUT ON BETA-BLOCKERS AND IMPLANTED WITH A IED. HE IS CURRENTLY HAVING PROBLEMS WITH THE IED (UNDERCOUNTING ...

Catecholaminergic Polymorphic Ventricular Tachycardia

CarleeD
  • By CarleeD · Posted November 14, 2008
  • Discussion in Genetic testing · 0 replies
  • Im eighteen years old and am awaiting the results of my Genetic Testing for CPVT. A lot of people have died in my family due to this rare diesease. I was wondering if anyone was able to shed some light ...

Continuing problems with VA Health-care

b52gflyer
  • By b52gflyer · New reply November 14, 2008
  • Discussion in Health insurance experiences · 1 reply
  • I am a 100% disabled veteran. I left the service long before the Gulf Wars. For the last 7 years I have at Arrhythmia attacks. At least that is what the VA Cardio Clinic told me. A new doctor came in ...

Dealing with side effects of beta-blockers

Laylabug
  • By Laylabug · New reply November 12, 2008
  • Discussion in Help desk · 11 replies
  • I am an advocate who works with students who have attention deficit disorder. One of my new students is 16 y/o. After starting a stimulant for the ADD, he started having chest pain and was subsequently ...

New problem at the EP Docs office......

DaveB72
  • By DaveB72 · Posted November 12, 2008
  • Discussion in Building awareness · 0 replies
  • Was actually headed for the Dr. yesterday afternoon for a routine visit to check my implantable monitor. I was awoken at 4 30 yesterday morning by a heavy thumping in my chest. I recorded it and we discussed ...

epicardial ICDS in kids???? Can you share expereinces?

Buly
  • By Buly · Posted November 9, 2008
  • Discussion in Help desk · 0 replies
  • I have a 7 year old who was recently diagnosed with HCM-- because she has a severely large septum (4.0) she is being recommended for an ICD ASAP---but at this age/size it would have to be epicardial which ...

Anti-anxiety medication

briansutch
  • By briansutch · New reply November 8, 2008
  • Discussion in Help desk · 2 replies
  • Hi everyone, Earlier this week, my primary physician diagnosed generalized anxiety disorder and post-traumatic stress resulting from a series of inappropriate shocks and surgical complications I had when ...

Beta blockers and trouble in school?

mom2twinz
  • By mom2twinz · New reply November 8, 2008
  • Discussion in Help desk · 12 replies
  • Hi everyone! I have twin boys (fraternal) who are 9 years old. One son is LQT with Bradycardia (N), the other is borderline LQT (M). They were diagnosed after our pediatrician heard a heart murmur in ...

I feel great after 3 years.............

DaveB72
  • By DaveB72 · New reply November 5, 2008
  • Discussion in Building awareness · 6 replies
  • Just a quick note...I am 36, don't smoke, drink, drugs, etc. Avid gym user and used to run miles a day plus spent 9 years in the martial arts. I developed an arrhythmia 3 years ago out of nowhere. First ...

One other thing....

DaveB72
  • By DaveB72 · New reply November 5, 2008
  • Discussion in Building awareness · 2 replies
  • I also forgot to add that since I have returned to the gym I am watching my Vitamin D intake. Most vitamins have 400 iu of vitamin d in them already and then I drink milk throughout the day like crazy ...

Diagnosed with CPVT aged 9

latteda
  • By latteda · New reply November 3, 2008
  • Discussion in Help desk · 2 replies
  • I would be intersted to hear how common it is for people this age diagnosed with cpvt to get the ICD as our doctor is putting it off for the time being due to our sons age. Any help out there? Sarah ...

Long QT what now?

Corsin
  • By Corsin · New reply November 3, 2008
  • Discussion in Help desk · 4 replies
  • Hello everybody! I'm 20 years old and my sister, who's 17, had a hart attack this january. After 5 minutes without breathing the doctors were able to get her back to live. She's now recovering, but she's ...

PJRT-Permanent Junctional Reciprocating Tachycardia

tmarzano
  • By tmarzano · New reply November 1, 2008
  • Journal · 10 replies
  • My daughter developed an heart arrythmia called PJRT, Permanent Junctional Reciprocating Tachycardia at 2 months of age. Her condition is uncommon and I'm looking for any other patients with the same ...

Borderline Long QT-what activity should be allowed.

Myprecious3
  • By Myprecious3 · New reply October 31, 2008
  • Discussion in Building awareness · 18 replies
  • Hello, My 7yr old daughter was diagnosed this past April with "Borderline" long qt. It has been the most overwhelming time in our lives learning, worrying over this etc etc. She had fainted out of no ...

Wolff-Parkinson-White and Long QT syndrome, coexisting.

BKirsch
  • By BKirsch · New reply October 29, 2008
  • Discussion in Building awareness · 16 replies
  • Hi my name is Bonnie and I have a 4 year old daughter who has been diagnosed with having both Wolff-Parkinson-White syndrome and Long QT syndrome. I have yet to come across another person who has both ...

P-R-T axes and Torsades de Pointes?

Alynna
  • By Alynna · New reply October 25, 2008
  • Discussion in Building awareness · 1 reply
  • I'm trying to figure out what the P-R-T Axes values would be during Torsades de Pointes. Here are some real PRT values. Are they examples of Torsades de Pointes? P-R-T Axes: 070 063 -99 ...

New members

Please sign in to see new members. New user? Join here.
Forgot password?
Keep me signed in on this computer until I sign out

Inspire others

Together we're better - C.A.R.E. Cardiac Arrhythmias Support Community

Support your group with badges for your e-mail, website, blog, and more ...

Discussion topics

You

About this group

The C.A.R.E. Cardiac Arrhythmias Support Community connects patients, families, friends and caregivers for support and inspiration. The C.A.R.E. Cardiac Arrhythmias Support Community is sponsored by the Cardiac Arrhythmias Research and Education Foundation in partnership with Inspire.