The C.A.R.E. Cardiac Arrhythmias Support Community connects patients, families, friends and caregivers for support and inspiration... More about this group

Join today

All new and active discussions & journals

New group in Inspire: The National Body Challenge

Brian
  • By Brian · New reply yesterday at 10:50 am
  • Journal · 12 replies
  • I am pleased to announce that today we added a new group to Inspire: The National Body Challenge. nationalbodychallenge We created this group in partnership with Discovery Health. The group focuses on ...

Starting Over, Jan 2009. The Named Heart

martzj
  • By martzj · New reply January 4, 2009
  • Journal · 23 replies
  • Starting Over, Jan 2009. The Named Heart. “There are two ways to live your life. One is as though nothing is a miracle. The other is as though everything is a miracle.” Albert Einstein Give your heart ...

Our 13 year old girl passed away from a cardiac event

tdhssp
  • By tdhssp · New reply January 2, 2009
  • Journal · 2 replies
  • Our little girl passed away in December 2006 from a cardiac event at the age of 13 years. Samantha had a rare chromosome disorder and a bicuspid aortic valve, however, no other similarly diagnosed persons ...

Could this be Long Qt Syndrome ? Should my siblings be tested also ?

sandync36
  • By sandync36 · New reply January 2, 2009
  • Discussion in Building awareness · 5 replies
  • Hello , I am now currently 36 years old and my symptoms began when I was 12 years old . At age 12 , I began having episodes where I would get what felt like muscle spasms around my heart . When this would ...

13 year old girl dies from cardiac arrest

tdhssp
  • By tdhssp · Posted January 1, 2009
  • Discussion in Building awareness · 0 replies
  • Our little girl passed away in December 2006 from a cardiac event at the age of 13 years. Samantha had a rare chromosome disorder and a bicuspid aortic valve, however, no other similarly diagnosed persons ...

Atrial Fibrillation, Palpitations

jareeves4581
  • By jareeves4581 · New reply January 1, 2009
  • Discussion in Building awareness · 1 reply
  • My story is kind of long so I will try and make it short and stick to the major points. I am a 27 yr old male that has been battling the thought of heart disease for quite sometime now. When I was 18 ...

Catecholaminergic Polymorphic Ventricular Tachycardia

CarleeD
  • By CarleeD · New reply December 31, 2008
  • Discussion in Genetic testing · 1 reply
  • Im eighteen years old and am awaiting the results of my Genetic Testing for CPVT. A lot of people have died in my family due to this rare diesease. I was wondering if anyone was able to shed some light ...

PJRT-Permanent Junctional Reciprocating Tachycardia

tmarzano
  • By tmarzano · New reply December 18, 2008
  • Journal · 14 replies
  • My daughter developed an heart arrythmia called PJRT, Permanent Junctional Reciprocating Tachycardia at 2 months of age. Her condition is uncommon and I'm looking for any other patients with the same ...

Why are we here?

Brian
  • By Brian · New reply December 16, 2008
  • Journal · 136 replies
  • When we started this community, each of us faced important health issues in our lives. Some of us have family members with medical conditions. Many of us have medical conditions of our own. All of us ...

Tetrasomy 18p: "Samantha's Syndrome"

tdhssp
  • By tdhssp · New reply December 16, 2008
  • Journal · 2 replies
  • In loving dedication to our beautiful ^j^ daughter, Samantha, a place for persons with all disabilities to gather and learn from each other: Rare chromosome issues such as Tetrasomy 18p, Autism and more ...

One year ago today...

junimead
  • By junimead · New reply December 7, 2008
  • Journal · 14 replies
  • I was sitting at this very computer looking up some silly thing or another when I started to feel faint and get the then ever increasing chest pains. A painfully long trip to the emergency room via ambulance ...

My Story...

Brianne
  • By Brianne · New reply December 5, 2008
  • Journal · 8 replies
  • I did not know I had long qt before my cardiac arrest. I actually went to the hospital for severe abdominal pain one morning and the doctors determined I had an appendicitis. They started surgery and ...

Stress Test Music

DianeFromNapa
  • By DianeFromNapa · New reply December 2, 2008
  • Journal · 6 replies
  • Howdy everyone! I just wanted to let everyone know that I did well on my frist stress test s/p multiple SCA. I went 11 minutes and was able to get my heart rate up to 170 bpm (we had up'd the ICD setting ...

Support your group and raise awareness with badges

Walter
  • By Walter · New reply December 1, 2008
  • Journal · 35 replies
  • Hi everyone. We added a new feature today that you can use to support your groups and the organizations that sponsor them, and get the word out about the causes that are important to you. If you visit ...

Defibrillators in vending machines

DrD11
  • By DrD11 · New reply December 1, 2008
  • Discussion in Building awareness · 3 replies
  • In Japan,defibrillators are available in vending machines.("Japan Times",2006.Newspaper). What do you think ...

New feature: video!

Brian
  • By Brian · New reply November 23, 2008
  • Journal · 24 replies
  • I am pleased to announce that we have updated Inspire to support video. You can now share a video of yourself, videos that you find inspirational or informative, and more. I've included one of myself ...

Long QT what now?

Corsin
  • By Corsin · New reply November 22, 2008
  • Discussion in Help desk · 5 replies
  • Hello everybody! I'm 20 years old and my sister, who's 17, had a hart attack this january. After 5 minutes without breathing the doctors were able to get her back to live. She's now recovering, but she's ...

My inappropriate sinus tachycardia

Darline
  • By Darline · Posted November 15, 2008
  • Discussion in Building awareness · 0 replies
  • Hi everyone, My name is Darline and I and 28 years old with a 6 year old son. My heart issues started in febuary of this year. I woke up one night at 3:00am. I was feeling sick to my stomach, flushed ...

CATECHOLAMINERGIC POLYMORPHIC VENTRICULAR TACHYCARDIA

chrismarch03
  • By chrismarch03 · New reply November 14, 2008
  • Discussion in Building awareness · 7 replies
  • OUR 14-YEAR OLD SON COLLAPSED AT SCHOOL AND WAS REVIVED WITH A IED. HE WAS DIAGNOSED WITH CPVT, PUT ON BETA-BLOCKERS AND IMPLANTED WITH A IED. HE IS CURRENTLY HAVING PROBLEMS WITH THE IED (UNDERCOUNTING ...

Continuing problems with VA Health-care

b52gflyer
  • By b52gflyer · New reply November 14, 2008
  • Discussion in Health insurance experiences · 1 reply
  • I am a 100% disabled veteran. I left the service long before the Gulf Wars. For the last 7 years I have at Arrhythmia attacks. At least that is what the VA Cardio Clinic told me. A new doctor came in ...

New members

Please sign in to see new members. New user? Join here.
Forgot password?
Keep me signed in on this computer until I sign out

Inspire others

Together we're better - C.A.R.E. Cardiac Arrhythmias Support Community

Support your group with badges for your e-mail, website, blog, and more ...

Discussion topics

You

About this group

The C.A.R.E. Cardiac Arrhythmias Support Community connects patients, families, friends and caregivers for support and inspiration. The C.A.R.E. Cardiac Arrhythmias Support Community is sponsored by the Cardiac Arrhythmias Research and Education Foundation in partnership with Inspire.